Daughters first epileptic seizure

Not what I expected my first post to be about, but it happened and some time has passed and I am going to write about it here.

A few weeks ago was one of the scariest moments of my life. I was already asleep and at some point after that, my 6 year old daughter climbed into bed with me and went to sleep next to me. From what I am told she was asleep fr about 30 minutes when I felt her repeatedly bumping me and making a repeating sound from her mouth. It woke me up and my first thought was that she was playing around, but when I saw her eyes going back and forth and she wasn’t responding at all to me I could tell she was having a seizure.

Besides that I didn’t know what was happening or why. For all I knew, she could have been dying. We called 911 and went to the hospital and were released several hours later. over the next week she had several tests including CT, EEG, and MRI. Fortunately the majorly evil things like a huge tumor was ruled out, but 4 days after her first seizure she had a second.

To make a long story shorter, she was diagnosed with Benign Rolandic Epilepsy. A form of epilepsy that they expect she will grow out of before she is a teenager, be controlled with medication, and if more seizure occur they will most likely be at night.

The week from her first seizure to the time she was diagnosed and put on medication was a week of sleepless nights for me. I slept on her floor next to her bed every night and for the first couple of nights I set an alarm on my phone to go off every 15 to 30 minutes so I could wake up and check on her.

It has been almost 3 weeks since her last seizure. She has not had anymore since she has been on medication and everything is getting back to normal including my sleep. There are still slow days at work when I have a lot of time to think and paranoid thoughts cross my mind and I just want to come home and see my children, but hopefully life will normalize from here out and rearguards of all the paranoid fears in my head, my daughter will be just fine and grow up to have a normal life.

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